Meet Kevin Wake, a 57-year-old sickle cell warrior from Kansas City, who shares his personal journey living with this lifelong genetic blood disorder.
Meet Nathan Mermilliod who shares his experience living with severe hemophilia B, a rare bleeding disorder that requires lifelong prophylactic treatment to prevent dangerous internal bleeds.
Meet Ami Gopalan, who shares her journey living with IgA nephropathy, a rare autoimmune kidney disease that attacks the kidneys.
In this emotional video, meet Kate Vander Weele who shares her family’s journey as her 12-year-old son Logan battles Duchenne muscular dystrophy, a rare and fatal genetic disease that causes progressive muscle loss.
In this episode, we talk with Franck Rahaghi, MD, MHS, Executive Director of Cardiopulmonary Global Medical Affairs at United Therapeutics, about pulmonary hypertension in interstitial lung disease (PH-ILD), a serious and often under-recognized condition at the intersection of two progressive diseases. We discuss the importance of early recognition, the role of multidisciplinary care, emerging treatment options, and what patients, clinicians, and payers should know to improve outcomes.
In this episode, we talk with Arash Mostaghimi, MD, MPA, MPH, Vice Chair of Clinical Trials and Innovation, Brigham & Women's Hospital Department of Dermatology. Dr. Mostaghimi discusses alopecia areata—an autoimmune disease that causes patchy or complete hair loss—its inflammatory basis, how severity is measured, and the profound psychosocial impacts on patients and families. He also reviews the latest FDA-approved therapies, evolving treatment guidelines, and what patients, clinicians, and payers should know as new options reshape care.
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Meet Gesna Clarke who shares her health journey with amyloidosis, a rare genetic condition caused by mutations in certain genes that lead to the abnormal production of amyloid proteins.
Meet Lindsey Sullivan who shares her personal journey with alopecia areata, offering valuable insights into the emotional and clinical aspects of living with this autoimmune condition. As both a patient and advocate, Lindsey sheds light on the challenges of diagnosis, treatment decisions, and navigating the healthcare system.
Hemophilia is a disorder where the blood does not clot properly. This is due to the body not having enough blood-clotting proteins. This can lead to spontaneous bleeding as well as bleeding following injuries or surgery. They are two types of hemophilia. Hemophilia A and Hemophilia B. Hemophilia A is caused by the lack of low level or clotting factor VIII. Hemophilia B is caused by the lack or low level of clotting factor IX.
Chronic Kidney Disease is when the kidneys gradually get damaged over time and the kidneys are unable to complete functions such as removing wastes from your body, maintain blood pressure, and keeping your bones healthy.
Breast cancer is the most common cancer diagnosed in the US, and it is also the most common cancer diagnosed worldwide. In the US alone, approximately 4 million women are diagnosed with the disease.
Host Fred Goldstein invites Brian Hilberdink, President, Executive Vice President North America and Douglas Maslin, MD, Global Principal Medical Advisor to discuss LEO Pharma and their involvement with AMCP.
