Meet Nicki, who shares her story of living with Excessive Daytime Sleepiness (EDS). Nicki discusses the daily impacts of dealing with the rare disease and the physical and social implications is causes.
Gesna’s Patient Story: Amyloidosis
Meet Gesna Clarke from California who shares her health journey with amyloidosis, a rare genetic condition caused by mutations in certain genes that lead to the abnormal production of amyloid proteins. These proteins misfold and deposit in tissues and organs, disrupting their normal function. Hear from Gesna how this condition has impacted her family and how she plans to not let it halt her life.
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Meet Ami Gopalan, who shares her journey living with IgA nephropathy, a rare autoimmune kidney disease that attacks the kidneys.
Meet Nathan Mermilliod who shares his experience living with severe hemophilia B, a rare bleeding disorder that requires lifelong prophylactic treatment to prevent dangerous internal bleeds.
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