In this video, Shelby Cole shares her experience living with narcolepsy type one with cataplexy, a chronic neurological disorder that affects the body’s ability to regulate sleep and wake cycles.
Gesna’s Patient Story: Amyloidosis
Meet Gesna Clarke from California who shares her health journey with amyloidosis, a rare genetic condition caused by mutations in certain genes that lead to the abnormal production of amyloid proteins. These proteins misfold and deposit in tissues and organs, disrupting their normal function. Hear from Gesna how this condition has impacted her family and how she plans to not let it halt her life.
This video was produced by AMCP and supported by an independent medical education grant from BridgeBio Pharma, Inc.
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In this video, Jessica of Chadds Ford, Pennsylvania, shares her journey living with eosinophilic esophagitis (EOE), a chronic inflammatory condition that causes difficulty swallowing and food impactions. After years of symptoms that were initially treated as acid reflux, a biopsy finally confirmed her diagnosis.
Meet Troyce, who shares her story of living with hereditary angioedema (HAE). Troyce discusses the dangers of delayed diagnosis, the impact of living with a life‑threatening condition, and how access to treatment and community support changed her life.
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