Meet Ami Gopalan, who shares her journey living with IgA nephropathy, a rare autoimmune kidney disease that attacks the kidneys.
Gesna’s Patient Story: Amyloidosis
Meet Gesna Clarke from California who shares her health journey with amyloidosis, a rare genetic condition caused by mutations in certain genes that lead to the abnormal production of amyloid proteins. These proteins misfold and deposit in tissues and organs, disrupting their normal function. Hear from Gesna how this condition has impacted her family and how she plans to not let it halt her life.
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Meet Nathan Mermilliod who shares his experience living with severe hemophilia B, a rare bleeding disorder that requires lifelong prophylactic treatment to prevent dangerous internal bleeds.
Meet Kevin Wake, a 57-year-old sickle cell warrior from Kansas City, who shares his personal journey living with this lifelong genetic blood disorder.
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