Rare Diseases

Ep 63 of Unscripted Podcast Thumbnail

Pediatric Narcolepsy Challenges, Opportunities, and Emerging Therapies

In this episode of AMCP Unscripted, host Amy Lugo, PharmD, BCPS, BC-ADM, FAPhA, FAMCP, Founder and CEO of LoneStar Health Solutions, is joined by Dr. Joshua Lennon, Assistant Professor at the University of Tennessee Health Science Center, to discuss the unique challenges of diagnosing and treating narcolepsy in children. They explore why pediatric narcolepsy is frequently misdiagnosed, the significant delays many patients experience before receiving an accurate diagnosis, and the impact untreated symptoms can have on learning, social development, and long-term health. The conversation also examines current FDA-approved treatment options, promising advances in orexin-targeted therapies, and the important role managed care professionals play in improving timely access to evidence-based care for children living with narcolepsy.

The Burden of Chemotherapy-Induced Myelosuppression in Patients with Small Cell Lung Cancer: What’s New?

Sponsored webinar that reframed the landscape of Chemotherapy-induced myelosuppression (CIM) with a fresh perspective on the root of the clinical problem, the patient burden revealed through real world management of CIM, and the hope for a future that fulfills the unmet need – one made more complicated by the confounding influence of Covid-19 in the day-to-day management of people facing malignancy.
Payment Systems, Rare Diseases, Managed Care Practice Issues